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Albinism

Albinism is a rare inherited defect in melanin metabolism. Albinism can affect two things, the skin and eyes which is called oculocutaneous albinism or just the eyes which is ocular albinism. The word "albinism" refers to a group of inherited conditions. People with albinism have little or no pigment in their eyes, skin, or hair. They have inherited genes that do not make the usual amounts of a pigment called melanin. One person in 17,000 in the U.S.A. has some type of albinism. Albinism affects people from all races. Most children with albinism are born to parents who have normal hair and eye color for their ethnic backgrounds. Often people do not recognize that they have albinism. (NOAH).

Oculocutaneous albinism is from autosomal recessive inheritance; ocular albinism is from an X-linked recessive trait that causes hypopigmentation. In the United States both types of albinism are more common in blacks then in whites, Native Americans have a high incidence of the tyrosine-positive form (1 in 140 to 240). Infants wit


People in albinism cannot be out in the sun without wearing glasses, and clothing that covers up their whole body. Most people with albinism do not tan, and they burn easily on exposure to the sun. People with albinism who develop increasing amounts of hair and skin pigment as they get older may not be bothered by the sun, and may tan with sun exposure. If sun exposure produces a sunburn, then the skin must be protected to prevent burning and damage. (International Albinism Center). Albinism people can live a regular lifespan but they must stay out of the sun, if they don't, they are in danger of dying at a younger age. It's hard for people with albinism to live a normal life when they cannot go out in the sun. It's like being in jail but worst, if you try to leave, you have a chance of dying.

People with albinism are at risk of isolation, because the condition and they are often misunderstood. Social stigmatization can occur, especially among communities of color. We should all help by including them in all activit

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